I have not given you an update on my daughter in quite some time. She has had a really rough time of it as you can imagine.
For those who are new or just do not remember my daughter was diagnosed with an extremely aggressive form of breast cancer. She underwent chemotherapy for what seemed like forever. Of course she lost all her pretty blonde hair.
The chemo left her weak and tired. On top of that the shunt they put in to make it easier for the nurses administering the chemo was installed wrong. They had such a hard time using it that my daughter considered stopping it after a couple of months. She said it was just too painful. Finally the doctor did surgery to put in a different one.
My daughter needed a special drug for her chemo. Her insurance would not cover it. One of the nurses was kind enough and tenacious enough to find a program that paid for it.
My daughter decided to have a double mastectomy because the odds of it traveling to the other breast were high. She just wanted to be done with it.
The surgery went well but she did not seem to recover very fast. Maybe I expected too much. She usually heals quickly.
After the surgery there was more chemo along with radiation therapy. The radiation burned most of the skin from her armpit.
When they removed her breasts they fitted some contraption under the skin to prepare for transplants eventually. They caused so much pain the doctor had to remove them. My daughter said it felt good to be able to breathe pain free again.
So finally after a few months she had surgery to put in the implants. What they do is remove tissue from the abdomen and place it in the breast.
During the surgery and recovery she received 14 units of blood, 2 units of plasma, and one unit of something else. On average an adult has around 10 units of blood circulating in their system.
On about the third day of recovery someone finally took a look at one of the 6 drainage tubes that my daughter told her was bothering her. My daughter was lying in a pool of blood. When the woman went to gently move the tube to one side it exploded outward similar to an erupting volcano. It sprayed the woman, my daughter, and all over her bed. The only thing it missed was a little stuffed animal that was wearing the St Benedict medal my daughter was not allowed to wear but wanted close.
They covered the implants with folds of skin that had been saved from her breasts. After the first examination by the surgeon she was told that one flap of skin looked like it was dying. They would watch it for progress.
It seemed to be getting better. Instead it died. Another surgery removed that flap of skin. My daughter insisted on going home. She felt she was not getting the care she needed at the hospital. She felt more comfortable at home.
She has kept her doctor's appointments and is doing what they prescribe.
One day she noticed that the implant was exposed where the bad flap had been. She notified the doctor. He immediately performed another surgery because the implant actually fell out.
There will be another surgery in a couple of months to either make another implant or somehow pull a muscle from her back around to use as an implant. I do not understand.
Internally and emotionally my daughter is so much better. Physically she still has huge limitations but she is no longer afraid she is going to die.
I am not looking for sympathy and it drives me insane. I only wished to let you know how she is doing.